Resources
Commonly Asked Questions:
- What is dementia and how is it different from Alzheimer’s Disease?
- How does dementia affect the brain?
- What causes the different forms of dementia?
- What is the diagnostic process for dementia?
- What are the treatments for Alzheimer’s and other dementias?
- What supports are available for families and caregivers?
- How do I get involved in clinical trials?
For more Information regarding these and other questions about Alzheimer’s and other related Dementias please visit:
- US Department of Health and Human Services
- National Institute on Aging: www.nia.nih.gov
Go to “Health Information” then click on “Alzheimer’s Disease and Related Dementias” - Alzheimer’s Disease Education and Referral Center: nia.nih.gov/alzheimers
National Associations
- Alzheimer’s Association: www.alz.org
- US Against Alzheimer’s: www.usagainstalzheimers.org
- Alzheimer’s Foundation of America: https://alzfdn.org
- Lewy Body Dementia Association: https://www.lbda.org
- The Association for Frontotemporal Degeneration: www.theaftd.org
- Brain Injury Association of America: www.biausa.org
- National Association for Downs Syndrome: www.nads.org
- Bright Focus Foundation: www.brightfocus.org
In addition to the above resources, please contact your local community aging resources for local services within your community.
Wisconsin Residents
In my home state of Wisconsin I have worked directly with the following resources regarding clinical trials and encourage you to contact them for more information:
- Wisconsin Alzheimer’s Institute: wai.wisc.edu
- Wisconsin Alzheimer’s Disease Research Center: adrc.wisc.edu
“No! No!” shouted Ollie, “I don’t want to go in there! That’s not my grandpa; he doesn’t even know who I am anymore.” So begins the beautiful journey of a little boy that transitions from being scared and frustrated that his grandpa, and best friend, does not know him anymore, to a boy that learns what HE can do to reconnect with his grandpa who is living with dementia. This unforgettable story takes readers through a range of emotions, from sadness to hope, as Ollie learns how to better understand the effects of dementia experienced by his grandpa and what he can do to help hold on to his relationship and enjoy their time together. This story is a lesson for children and adults to learn to accept a loved one experiencing dementia and to celebrate the joy in the interactions they still experience together.